The Diagnosis
I knew it wasn’t going to be good news but it still arrives
with a jarring thud.
“Bone on bone with the joint collapsing.” Dr. Dive delivers
this in a very neutral but kindly tone of voice. No doubt he has had to say
this many times, as he is a prominent complex joint surgeon with the experience
to know exactly what he is talking about. People ask who my surgeon is and when
I tell them, they all say things like, “Lucky You! He’s the best.” My GP was
very impressed. A quick Google finds that he is a well-respected academic in
addition to his creds as a great surgeon. This has been quite reassuring.
I smile, a bit blankly, “Any options with injections?” I was
hoping that the lab made synovial fluid injections might buy me some pain
relief and time before surgery.
“I’m afraid that you are well beyond that.” Was his answer
in the same tone of voice.
Sigh and a nod on
my part.
“We are looking at four to six months to get a surgery
date.”
I nod again, with some relief, as this means there actually
is an end in sight. I have been in limbo for the past year as I have been on
waiting lists and increasing painkillers to deal with my decreasing mobility.
Dr. Dive is gentle and efficient. He recites the diagnosis
into a digital audio recorder and I get to hear it again in medical language as
he spells out just what is happening to my hip and what needs to be done.
Afterwards, I make sure to let his office know that I am
interested in any cancellations that might come out and would be very flexible
with my schedule. I am pleasant and accommodating with the very efficient
assistant, while silently hoping for that slim chance that an opening that I could slip into would appear.
How Did This Happen?
“You are too young to need joint replacements yet!” My GP,
Dr Lee (a wonderful woman) was surprised when it became increasingly clear that
I was losing mobility. I was less surprised, coming from a family with a long
history of osteoarthritis. My knees had been deteriorating for years and I am
one of the fortunately ones that benefit from the lab made synovial fluid
injections. But, this was different. I had been gardening one Sunday afternoon
in April and when I got up, something catastrophic happened. I had
tear-inducing pain all throughout my right side, running from back to toes.
“Sciatica is a possibility, but we need to take a look at
that hip.” (It had been feeling ‘funny’ over the past month) she said, and sent
me off for x-rays.
The Radiologist decides that there is nothing evidently
wrong with the hip, and there is some disc bulging in the lower back. Initial diagnosis of
sciatica, and I go onto my first waiting lists. One for an CT Scan of the lower
back and the other for the Spine Clinic with its attendant surgeons.
The Wait – I
Time Passes. Dr. Lee ups my pain killers and now nerve
medications as I wait. I continue to go to work because not working would be
boring as well as painful. There is always lots of work to be done.
My CT Scan happens at the end of May. Nothing exciting to
report except that there is no bone to nerve impingement in my lower back. This
is very good news, but I am still in severe pain.
I take my vacation in July and spend part of that time with
a massage therapist who eases the tensions in my leg muscles. This balances out
my walking, but I cannot lift my right leg and all I can do is mark time by
observing the slow loss of mobility. I went from walking at least 12,000 steps
a day, down a couple hundred each week until it was no more than 5000 in a day.
I continued with my Community Kitchen Activities and
everyone is very good about letting me organize the activities. I spend a lot
of time sitting on the side watching the action as we can up 500 pounds of
tomatoes, 150 jars of salsa, litres and litres of pickles, and two sessions of the
famous “Apple Pie in a Jar” canning at the Copley Community Orchard.
Then a phone call in October! I have an appointment with the
spine specialist at the end of November. Having a location, date, and time on
the calendar brightens up
First Specialist Visit
I am finally in at the Spine Clinic for my consultation. I’m
also down to 4000 steps a day before I hit serious discomfort and disability.
“Hi, I’m Dr. Hunter. What seems to be the problem?” I
explain how I ended up in his office; give him a quick rundown of symptoms and actions.
He asks a few questions, has me walk back and forth across the room, and
examines my spine…and hip.
“I may be wrong, but I don’t think that your spine is your
biggest problem. You have almost no mobility in your right hip. Let’s get a new
set of x-rays right now.” The Lab is right there around the corner in the
building. New x-rays are taken and I wait for a few minutes before being called
back in.
My hip x-ray flashes on the screen. “See this side?”
pointing to the left hip “This is fine. Now, the other side...” And it becomes
completely obvious that the right hip is not fine at all!
“I am referring you to the Complex Joint Clinic. You should
expect to get in within four to six weeks.” I thank him for a clear picture
about what is happening and leave in a bit of a daze.
Okay, another round of hurry up and wait.
The Wait – II
I won’t say too much, except that I am very good at waiting
now. I keep busy. I work at controlling my pain and that includes breathing
techniques along with medications. By the end of January, it was taking two
days’ worth of energy to do one day’s work. I am grateful that I could do half
of my work remotely and/or online.
With Christmas in the offing, I guess (correctly) that it
would be more like six to eight weeks and was not surprised to get an
appointment with Dr. Dive, a noted hip surgeon, for the 25th of
January.
The visit with Dr. Dive was
informative, concise, and direct. I now just needed to wait…again.
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